About CFA
Cystic Fibrosis Australia (CFA) is the national peak body representing people living with cystic fibrosis (CF) and their families across Australia. As the leading national voice for the CF community, we work to improve health outcomes, extend life expectancy, and enhance quality of life through advocacy, research, clinical collaboration, and community support.
Cystic fibrosis is a life-limiting genetic condition that primarily affects the lungs and digestive system. While there is currently no cure, advances in treatment are transforming what is possible, enabling people with CF to live longer, healthier, and more active lives than ever before. CFA plays a critical role in ensuring these advances translate into real-world impact for all Australians living with CF.
Our work spans national advocacy to secure equitable and timely access to treatments, influence health policy, and ensure the voices of people with lived experience are central to decision-making. We also lead and support programs that strengthen the CF ecosystem, improving standards of care, building capability across the health workforce, and delivering initiatives that enhance outcomes for individuals and families at every stage of life.
CFA administers the Australian Cystic Fibrosis Research Trust (ACFRT), which has contributed to almost $10 million to Australian-led research. Through this, we support innovation across clinical care, new therapies, and pathways toward a cure. In addition, CFA oversees the Australian Cystic Fibrosis Data Registry (ACFDR), a vital national asset that collects and analyses data to improve clinical practice, inform policy, and drive continuous improvement in care and outcomes.
Collaboration is at the heart of everything we do. CFA works closely with state and territory CF organisations, clinicians, researchers, government, and industry partners across Australia, as well as with leading international CF organisations. These partnerships ensure Australia remains connected to global best practice and continues to contribute to, and benefit from, advancements in cystic fibrosis care and research worldwide.
As the national peak body, CFA is committed to building a stronger, more connected CF community and shaping a future where every person with cystic fibrosis has access to the care, treatment, and support they need to live a full and supported life.
Visit the CFA Website
https://www.cysticfibrosis.org.au/The 16th Australasian Cystic Fibrosis Conference will be held on the 7 - 9 August 2026 at the Nyaal Banyul Geelong Convention and Event Centre.
www.acfconference.com.au
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